Autoimmune and Diagnosis Update!

Well, that didn't go to plan.

Does it ever?

“We plan, God laughs.” That’s the quote, right?

I had this whole plan to reduce toxins and inflammation and increase mitochondrial activity. I wanted to make it a series. I started interviewing other people with chronic illnesses and autoimmune issues.

And then I hit a wall. A lot of people in the autoimmune community use the spoon analogy to explain how chronic illness makes you simultaneously fatigued and more burdened by everyday tasks due to the illness.

The past couple of weeks, I have been running on no spoons.

After meeting with my rheumatologist, I lost a lot of hope of ever getting better. It made me feel like “what’s the point in trying?” My quality of life is so low, what will struggling to be more resilient actually help me to achieve?

(I am not proud of these thoughts, I know that I am very blessed to have so many amazing people in my life supporting me.)

And then, what I believe was divine intervention stepped in.

Judy Cho, AKA Nutrition with Judy, has been producing a lot of content around Chronic Inflammatory Response Syndrome (CIRS), recently. She reached out to me to see if I had considered it as something that could be the root cause of some of my symptoms (especially the new, weird ones - face tingling, electric shocks, sensitivity to beef, headaches, etc),

And WOW - CIRS is a rabbit hole.

I was skeptical at first, thinking “no no this is just my autoimmune disease.” But the more I researched, the more I realized this could be the key to health for myself and so many other people suffering with chronic illness.

So, what is CIRS? Simply put, it is a genetic predisposition to being really awful at clearing biotoxins like mold and Lyme disease from your body. It starts an inflammatory process but isn’t able to complete the step of clearing the toxin so your body is stuck in a feedback loop of inflammation and toxin.

The crazy thing is that CIRS can trigger a lot of other fuckery in the body - things like autoimmune or GI issues. People who are diagnosed with things like fibromyalgia or Mast Cell issues may actually be experiencing those things as a symptom of CIRS!

Luckily, a dude named Dr. Shoemaker figured this out and created a really precise protocol for identifying and treating CIRS.

I consumed like 50 hours of CIRS content and decided to take the leap. It is kinda crazy how prevalent this may be - 20% of people have the genetic potential for CIRS and 50% of buildings are water damaged - these conditions would cover about 40 million people. That is a lot of people! And that doesn’t even include any of the other biotoxins like Lyme that could trigger a CIRS reaction.

My next step is getting the bloodwork to identify my genetic potential and inflammatory markers that would indicate CIRS.

Mostly, I am very excited that this could be an answer that doesn’t condemn me to a lifetime of immunosuppressants. For the first time in a long time, I feel hope that I could get better.

And if the numbers are true, and the extensive amount of published research behind CIRS makes me think they are, so many people are suffering from this and have probably never even heard of it.

I find this topic fascinating, so regardless of my own results, I am going to create a post to share what I have learned about CIRS.

So, come on, Alice, join me down this rabbit hole!

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